Gaga

so, I’m back. It’s been a while…I seem to say tha a lot don’t I? I have moved house now so I am slowly getting settled into the new place. Lots of painting and DIY opportunities. I will take you round the projects at some point soon. Honest. But today I wanted to share a…

Knowledge 2

So it’s taken me a while (but what’s new) but here is my second instalment of my diagnosis story. First instalment can be found here. So there I was, holding down a high powered job, crossing the globe advising multinationals at board level about their tax governance etc etc,  looking after two small boys, trying…

Knowledge 1

Discovery is an interesting concept. A tiny piece of knowledge, of information and your life can change beyond recognition. I woke up this morning and I looked on YouTube and read a video blog of somebody’s diagnosis of Parkinsons. Incredibly ,they got the diagnosis from standing start to full knowledge in less than 24 hours…

Together

It is fair to say that a binary style is a more Familia system to me. I have not lived alone in years… I mean decades. And the biggest challenge I find is coordination. Not only my physical actions (let’s face it, with Parkinson that was always going to be an issue!). No, I mean…

Now

I have a confession to make, I have another love in my life. I have been working on another venture and this weekend it took flight. I am now the founder of an arts space here in Stitchopolis. Can you believe it??  Check it out here.  Hope you like!

Folding

Today I folded paper and My son dictated the design.  He chose my folds, the way I turned The paper, here then there.  I find the folding soothes the soul I love to concentrate To focus is to forget – i find It helps me lose the thread.  I like to let my mind unwind…

Supernova

The timeline is complicated But unforgivingly straight  Before the night We shine We burn I’m bright, I know I have letters to prove To me, at least. But Perhaps this fire this inner flash This drive these files this splash Are my last gasp My battle cry Before I start to fade. I’ll rage against…

Rocking

I crashed and burned today,  my body just refusing  To move the way I wished it to, I stopped and pain ripped through. My friend appeared and so I asked For help. She did, of course. And so I glided home A passenger  all tucked in tight But weary to the bone. My partner saved…

Silver spoon

I look for a silver spoon To help the medicine go down  The bitter taste sticks around And reminds me that  Life is not all sugar It’s not so sweet at times. But then, sugar isn’t really sweet A history stained with tyranny and tears.  Shielded by marketing and greed But it fixes the rancid…

Shake it off

You may know by now that I won the lottery of life back in 2007 when I was diagnosed with early onset Parkinson’s. Now, most of the time I choose to willfully ignore it. This is not bravery or inspirational behavior, I’m sorry to say. Rather, it is sheer blind ignorance, conscious ignorance, intended ignorance…