I crashed and burned today,
my body just refusing
To move the way I wished it to,
I stopped and pain ripped through.
My friend appeared and so I asked
For help.
She did, of course.
And so I glided home
A passenger
all tucked in tight
But weary to the bone.
My partner saved me at the gate
And placed me on a throne
Of rocking chair and threadbare stool
And gave me water cool.
I cried, I have to admit now.
I cried, the tears were hot.
Because I have so much to do
But I had quite forgot,
That moderation is the key,
I have to pace myself.
Because a swoop begats a dive
And I can’t face myself.
And yet I’m here at almost 12.
I’m sitting up alone.
Because despite my limits clear
I still must make you hear…
Make you understand –
this Disease does not define me
Confine, oh yes, it does that well
But best me?
Not a hope in hell.
